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Useful Contacts for TTTS

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Fetal Hope Foundation
Provides support, information, education about TTTS and other fetal distress syndromes affecting twins and multiples during pregnancy. Funds research into TTTS and fetal distress syndromes (acardiac twinning sequence—TRAP; amniotic band syndrome—ABS; fetal lower urinary tract obstruction—FLUTO). Operates call center and message board to help families save babies’ lives. Fundraising efforts include national pledge drive and annual TTTS Race for Hope in Denver, Charlotte, Seattle and Los Angeles. Collaborates with leading TTTS laser surgeons and medical centers treating multiples in utero. Lonnie Somers serves as executive director.
9786 S Holland St
Littleton, CO 80127
(877) 789-HOPE or (303) 932-0553
http://www.FetalHope.org


The Twin to Twin Transfusion Syndrome Foundation
Founded in 1989, The TTTS Foundation is an international 501.c.3 nonprofit organization dedicated to providing educational, emotional, and financial support to families, medical professionals, and other caregivers before, during or after a diagnosis of TTTS. The organization is dedicated to saving the babies, improving their future health and care, furthering medical research, and keeping families together the way twins are meant to be.  Direct help, education and compassionate guidance given through our toll-free number for diagnosis, bereavement, NICU and special needs.   Foundation support groups are also very active on Facebook.

411 Longbeach Parkway
Bay Village, OH 44140
800-815-9211
http://www.tttsfoundation.org

Monoamniotic.org
An online support organization for parents who have been diagnosed with monoamniotic, monochorionic twins. This site contains the most current information available about monoamniotic twins and the various treatments used by the medical community.
http://www.monoamniotic.org

twin2twin
The UK Twin to Twin Transfusion Syndrome Association is made up of parents, caregivers and research professionals all dedicated to raising awareness of the syndrome, funding research, and providing care and advice to parents. The aim of the organization is the preservation and protection of the health of unborn babies suffering from TTTS by the provision of information, advice, and support.
http://www.twin2twin.org

Hasbro Children’s Hospital
www.lifespan.org/ADAM/English/HIE/001595.htm

Women’s & Infants Hospital of Rhode Island

101 Dudley St
Providence, RI 02905
(401) 274-1100
http://www.womenandinfants.org

The Fetal Treatment Program
Brown Medical School

(401) 228-0559
http://bms.brown.edu/pedisurg/FetalTreatment.html

Fetal Care Center of Cincinnati
3333 Burnet Ave, MLC 2023
Cincinnati, OH 45229-3039
(888) 338-2559 or 513-636-9608
http://www.fetalcarecenter.org/

The Children’s Hospital of Philadelphia
34th St & Civic Center Blvd
Philadelphia, PA 19104-4399
(215) 590-1000
http://www.fetalsurgery.chop.edu

The International Institute for the Treatment of Twin-to-Twin Transfusion Syndrome
St. Joseph Regional Medical Center

Julian E. De Lia, MD
5000 W Chambers St
Milwaukee, WI 53210-1688
(404) 447-3535
http://www.wfhealthcare.org/

TTTS Australia Inc.
PO Box 1343
Carindale QLD 4152 Australia
http://www.twin-twin.org/index.htm

Australian TTTS Awareness

email: trudips@iprimus.com.au
crawfordak@iprimus.com.au
http://ttts.8k.com/main.htm

Children’s Hospital Los Angeles
Fetal Therapy Program
Dr. Ramen Chmait
1300 N Vermont Ave
Los Angeles, CA 90027
(323) 671-6074
http://ourbaby.org/fetal-therapy/

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